What else is there to do when you finally think some progress is taking place and WHAM! Slam down to the floor! (sight) Deedee just did that today, and it makes me so angry! I understand her reasons... but thanks to her tantrum she will not get the Tobii now, which means another year... For a 3 year old she knows the whole handbook about manipulation, and although we understand it is all she can do to assert herself it is also all she can do to set herself to failure! We explained things in all ways possible, but she just don't want to use the system. So... What's next. Tobii was the window to set her free in a world where she could do things on her own: communicate, learn, play, interact... Now, we go back to square one and that means she has no assistive device basis and we will have to go through the school system so she gets it. The difference is that the system won't be hers, so if we move it cannot go with us unless it is a school-to-school loan (maybe)... I just feel lost here, right now. Her sabotage broke our credibility and now to prove what she can do will be harder... to get the yes will be harder. If only the diva knew just the depth of her tantrum she would have just simply answered yes/no and move on with life.
A bad day, for all of us...
